Attendance: Andrea Alves, Brannon Senger, Anne-Marie Baker Devost, Diana Urajnik, Lillian Duda, Jill Shakespeare, Lauren Caruana, Josette Morin, Rameiya Paramalingam, Ian Speiran, Dayna Rossi, Janet Durbin, Kim Hewitt-McVicker, Aristotle Voineskos, Monica Choi, Nicole Kozloff, Victoria Vill, Carol Maxwell, Sanjeev Sockalingam
Administrative
Site Meetings
Site meetings are scheduled this month for the following dates:
Monday , March 15th from 9:30- 10:30am - Niagara
Tuesday, March 23rd from 3pm-4pm - Waterloo
Monday March 29th from 10am-11am - Durham
Our goal is to connect with each site on a personal level and keep clinicians engaged
Conversations at these meetings revolve around the experience of using this model of care
Thunder Bay site meeting this week went very well. Feedback on what was beneficial:
Slaight team posed questions to get dialogue going, reflect on practice changes since implementing NAV
It was helpful for site lead to encourage team ahead of time to be prepared to ask questions and discuss their experiences
Family and youth advisory representatives provided their valuable insights
Introductions
Jill Shakespeare is Interim Director of Implementation with PSSP and will be attending these meetings, welcome Jill!
ECHO
Implementation – ECHO
Summer curriculum planning in development, will be shared with hub members this Friday
Thanks to site leads for sharing suggestions/feedback for the upcoming curriculum!
We want content to be helpful and align with NAV
Upcoming Sessions
March 5: Emotional Regulation Techniques facilitated by Laura, case by Durham
March 19: Family Education Part 2 presented by Vivian, facilitated by Wanda, case by North Bay
April 2: cancelled due to Good Friday
Site Updates
Sudbury
Developing a process to collect data continuously instead of retrospectively, have not settled on a method yet and would be helpful to hear how other sites are doing this
The team is still growing an learning, and there are no concerns
Waterloo
Trying to gather data on feedback from clients who say no to participating in research, and have students coming in who can help with this
Had first family discharge group, inspired by NAV
North Bay
Current case load at 24 with people on waitlist
Have 1 clinician right now who is covering other clinician's clients while they are on leave
Thunder Bay
Had a wonderful site visit yesterday with the team, was great to share our experiences and discuss some areas we want to look at and allowed us to see that we have been involved for 4-5 months with implementation and took time to review some challenges with SEE role/COVID
Was wonderful to hear from FAC and YAC representatives about their experiences to help reinforce what we are doing
We had a good start to implementing and some areas we want to review and change things up
Family Advisory Committee
Family advisors have been enthusiastic about participating and are attending ECHOs and site meetings
Youth Advisory Group
Youth advisors are actively writing scripts for their upcoming video to showcase their lived/living experience with psychosis, self-care, and their involvement in the project
At meetings, advisors have been sharing their experiences and discussing feedback about conveying this for the video
Karleigh, Youth Engagement Coordinator at CAMH is helping to facilitate video creation using an animation program since the group cannot come together to film the video
Patient Measures
Referred: 99
Durham: 31; NB: 8; Niagara: 23; Waterloo: 10; Sudbury: 16; TB; 11
Enrolled: 48
Durham:13; NB: 5; Niagara: 10; Waterloo: 5; Sudbury: 8; TB: 6
Of the 51 not yet enrolled:
4 are scheduled/upcoming
20 we either have not been able to contact/need to reschedule/are actively following-up with clinicians
27 no longer interested
Follow-Ups (every 6 months)
15 6-month follow-ups have been completed and a few more are due to be scheduled this month
The first 1-year follow-up was completed with a participant from North Bay
The next 1-year follow-up is scheduled for next week with a North Bay participant
A few more 1-year follow-ups are expected to occur in later spring/summer
Family Participants
34 of the 48 youth participants have consented for family members to participate
14 have been enrolled, 6 are being contacted
We are hopeful that once the amendment is approved to complete surveys over email instead of a video-call, this will reduce burden on family participants
Implementation Measures and Outcomes
As Anne-Marie mentioned, the team is developing an excel spreadsheet for key milestones and interactions with clients
Any feedback from sites about the spreadsheet is appreciated so Janet and team can refine it
Will likely ask the first wave sites (Durham, Niagara, North Bay) to complete this data collection for 10-15 clients since implementation started
Data Collection Timeline: there are various pieces of the work going on right now, from Fidelity assessments to measure clinical care and ECHO for capacity building.
There will also be other interviews with small focus groups about barriers and implementation
Updates and progress about these initiatives should be discussed here and at implementation meetings
We will be releasing a schedule of the different assessments for clear communication and to avoid overburdening the sites, we will share with the site leads and post on the EPI-SET website
e-NAVIGATE
Dr. Nicole Kozloff, Dr. Wanda Tempelaar and Dr. Melanie Barwick have drafted a protocol paper and will be circulated to some members over the next few days
e-NAV received REB approval today and are moving ahead with planning Fidelity assessments
Developing qualitative interviews with the help of Victoria, Tallan and Kirsten
Met yesterday to conduct a health equity impact assessment to ensure we are identifying equity related issues for the delivery of e-NAV
Bipolar Disorder Training Modules
We have been working with the CAMH Education team to develop training modules for clinicians
The modules are ready and being piloted by Slaight staff
Once we get feedback from Slaight clinicians we will develop a plan to build into NAV training and share with sites.
Want to let everyone know that this is ready and has been reviewed and piloted by Slaight centre staff and we will think about how we can begin to help sites with that. a lot of work has been done over the past year, will be great for the youth and family members