Attendance: Carol Maxwell, Dayna Rossi, Diana Urajnik, Kim Hewitt-McVicker, Michael Weyman, Josette Morin, Brooke Magel, Marleine Saliba, Quincy Vaz, Nitha Vincent, Rabia Zaheer, Sarah Bromley, Jolene Felsbourg-Linton, Aristotle Voineskos, Tracy Graham, Lillian Duda, John Riley, Sara Traore, Kerri Nagy, Augustina Ampofo, Janet Durbin, Sandy Brooks, George Foussias, Nikki Kozloff, Catherine Dupuis Tonkovic, Emily Panzarella
ACTION ITEMS
Remind clinicians to complete site readiness surveys! – Site Leads
Check in with Catherine for TCPS-2 – Jolene
Check out new updates made to the “Trainings” section of the website https://www.epi-set.com/training – Everyone
Discuss details of pairing original FEPS-FS with new version of FEPS-FS adapted to NAVIGATE – George/Janet
Check in with family members who have been in your program for at least 12 months about interest in taking part in an interview – Josette/Kim/Jolene
Send recruitment blurb for family qualitative interviews to Josette, Kim, and Jolene – Nitha
Circulate Niagara newspaper article that one of our FAC members participated in to discuss EPI program – Emily
Administrative/Upcoming
REB: TCPS-2
Sudbury is wondering if we can remove Catherine Dupuis-Tonkovic’s name from our protocol and consent forms as she is experiencing technical issues with completing TCPS-2. Jolene is the site lead and already listed on the documents. TCPS-2 must be completed by all individuals listed in REB documents
This would require an amendment (which can take several months) and re-consenting all participants again (burdensome)
Decision: Jolene will connect with Catherine to see if she can complete this. RAs are available for support and Augustina has also offered to support the completion of the certificate.
Website Updates
The trainings tab on the website has undergone several revisions, see here: https://www.epi-set.com/training
Password: NavigateON
Site Lead Updates
Niagara
No updates
North Bay
More in-person appointments have been taking place in the clinic
Clinicians are working on outreach initiatives and promoting their services, as referrals have been lower than usual recently
Overall, NAVIGATE delivery has been going really well
Sudbury
1 clinician left the program and 1 is off sick, so staffing has been challenging
All work is now fully in-person and home visits are back in place (since the summer)
Connecting with Thunder Bay to join their upcoming family group sessions
Waterloo-Wellington
2 new staff are starting; coordinating with Michael for on-boarding tasks
More consults for prescribers
Thunder Bay
Increase in the number of referrals and intakes; currently has a waitlist
Training local peers to offer peer support to clients
Looking into ways to travel to remote communities for individuals in need of their services
Starting a family group at the end of January (Sudbury will be included)
Implementation & Fidelity – PSSP
Dayna has returned from her maternity leave! She will be re-assuming her role as Project Manager. Michael will remain on the project in a Knowledge Translation role as Jeff is no longer at CAMH.
Implementation – Continuing to support onboarding new staff for Sudbury and Waterloo
Fidelity – The team has met with every site to discuss results; upcoming meetings with site leads to discuss NAVIGATE delivery metrics
Readiness surveys sent out in December and 50% of responses received. The survey will stay open for a few more weeks – site leads to encourage clinicians to complete this! Ideally, the team would like at least 10 more clinician responses.
Preliminary evaluation shows a range of perspectives.
FEPS-FS Update
A new version of the FEPS has been developed for NAVIGATE specifically. For EPI-SET, we are using the original FEPS. The developers are asking if our team would be interesting in adapting the updated FEPS for our study (i.e., involved in the validation of the scale)
Janet and George to discuss further in regards to pairing the original and adapted FEPS
General ECHO
Next session: January 13th, 2023
Didactic: IRT | Presenters: Thunder Bay
Prescriber ECHO
Next session: January 26th, 2022 Presentation: Mood Stabilizer Side Effects by Dr. Chloe Leon
ECHO QI
Recruitment has started for the qualitative interview piece of the project! We are waiting to receive clinician names from Waterloo-Wellington and Sudbury before beginning with the interviews across all sites.
Goal: Interview 4 clinicians per site (from a wide range of roles)
Family and Youth Qualitative Interviews (FYQI)
Quincy Vaz, a student supporting the FYQI, has now joined the team as a full-time research analyst.
Our current pool of family participants is small – we will be recruiting a few family members directly from the sites to participate in the interviews
We are looking for 1 family member from: North Bay, Sudbury, Waterloo-Wellington
Site leads have agreed to ask their family support groups and/or individual family members involved in the program for at least 12 months to see if they are interested in participating
Nitha will send our blurb to the site leads that they can use when approaching families
Patient Measures and Outcomes
* Durham numbers are from Jan 2020 to Jun 2022
Recruitment and Retention
· Baseline: 100 participants | 6-month: 73 participants | 12-month: 51 participants | 18-month: 39 participants | 24-month: 25 participants
· 82 participants currently enrolled
Family Advisory Committee
One of our FAC members, Marie, participated in an interview with a local Niagara newspaper to discuss her experience with the EPI/NAVIGATE program. Check out the link
The group continues to work with the PFLS at CAMH to develop an education series focused on supporting families with loved ones experiencing psychosis
Janet and Sandy will be attending the February meeting to discuss fidelity results
Next meeting: January 12th, 2023
Youth Advisory Committee
The group is working on a presentation for Northeast Ontario EPI clinicians (will take place in February) focusing on effective communication with clients
Janet and Sandy will be attending the February meeting to discuss fidelity results
Starting to think about putting together a paper on YAC progress and having youth with lived experiences involved in research
Next meeting: January 26th, 2023
Other Items
We are planning to onboard more clinics this year! While they may not be involved in the entire research study specifically, clinicians are being trained on NAVIGATE.
Currently partnered with the COE to train these sites – it would be great to have some of the current site leads assist with this process! Involvement is TBD.
From our team, we will likely be involved in the sustainability/capacity-building areas
Kim let the group know that Trillium EPI Mississauga has expressed some interest in NAVIGATE.