Attendance: Andrea Alves, Lauren Caruana, Kerri Nagy, Josette Morin, Dayna Rossi, Diana Urajnik, Heather McKee, Rameiya Param, John Riley, Brannon Senger, Aristotle Voineskos, Sara Traore, Lauren de Freitas, Victoria Villanueva, Lillian Duda, Dielle Miranda, Carol Maxwell, Anne-Marie Baker Devost
Action Items
Contact sites for April 16 case presentation – Rameiya
Extract research participant data for duration of untreated psychosis and share with sites – Andrea
Share Ontario Perception of Care (OPOC) survey with sites – Dr.Kozloff/Andrea
Main Updates/Decisions Made
REB: Received CAMH REB approval for recent amendment, will proceed with site REBs next
Clinician Training/Annual Meeting: planning 2 half-days in June
ECHO: post-cycle 2 evaluations and cycle 3 curriculum to be released soon
Patient Measures: sites to complete referral form for all clients who are asked (yes’s and no’s); research team to share participant’s symptom and functioning scores with sites
Administrative Updates
Review Impact Summary (see attached)
Site Meetings
Thanks to all sites for participating in the annual site meetings, we had great discussions and will be incorporating feedback into upcoming ECHOs and trainings
Annual Meeting/Booster Training
Planning for early June with a half-day clinician training, and a half day meeting to discuss progress/opportunities
No travel required this time – will be more convenient
Site lead feedback:
North Bay, Niagara, Thunder Bay prefer 2 half-day morning meetings, as less clients are booked in the mornings
Dayna will connect with the remaining sites to confirm
Half day training with activities to support training needs
Site leads to share staffs’ needs with PSSP or research team so we can create a useful training for clinicians
Will also be useful for new staff that have joined
If the sites have suggestion for training, and any new staff we can think about how to use that time to support them
CAMH REB
We have just received approval from CAMH REB for our recent amendments which include:
Option to text referrals for setting up research appointments
Option for family members to complete surveys via email instead of videocall
Research Recruitment Poster for sites
We will proceed with site REB submissions next
ECHO
ECHO Surveys/Evaluations
Will be sending out self-efficacy survey and post-echo evaluations to obtain feedback; have not confirmed dates for this yet
Also determining logistics for the qualitative interviews for ECHO
Upcoming Sessions
April 16th on CBT (Part 2) with case presentation TBD
May 7th on IRT (Part 2) with case presentation by Thunder Bay
Site Lead Updates
North Bay
Had a great meeting with the research/Slaight team
Liked the idea of a welcoming/orientation to NAV for clients that Slaight does, but might be hard with smaller number of clients
22 clients right now, clinicians have been busy with a move
Getting a new manager starting this week
Still seeing clients mostly virtually but option to meet face-to-face and come in for injections
Clinicians say that clients have not been in hospital, but might be feeling more low/isolating more, and hard it’s hard to encourage clients to do more when they can’t really go anywhere
Niagara
Clients are being seen virtually and in-person
High number of referrals and clients that are unwell
Have experienced high turnover and need more staff, but staff are persevering and working hard to serve clients with a high standard of care
Peer support started a walking group
Interested in tracking the duration of untreated psychosis for each client
Research team may be able to provide this information to sites for any clients that participate in research, as we conduct a thorough SCID interview
For the half-day clinician training, would look forward to Tallan being a client for a training scenario
Thunder Bay
Intakes are moving forward but some did not show or were not a fit so recruitment has lagged a little
Meeting with Janet to review Fidelity assessment and discuss some areas for improvement
Sudbury:
Influx of COVID cases at the hospital with 2 units on lockdown, including mental health inpatients
Nurses are being redeployed from community care, including an EPI nurse (for approx. 6 weeks)
The team is already quite small so will be strategizing for the next little while to provide best care
Recruitment
Recruitment Updates/Strategies
101 clients referred and 55 enrolled
Referrals have slowed down in March
A reminder for clinicians to complete the Referral Form whether clients say yes or no to being contacted by the research team; this provides a better reflection of the volume of clients being asked and helps us to improve our strategies for recruitment
6-month and 12-month follow-ups are also underway
19 6-month follow-ups have been completed with 3 more due this month
2 12-month follow-ups have been completed with 2 more due this month
Sharing participant assessment scores with sites
An added benefit of having clients participate in research is the additional measurements conducted, which can provide more information about symptoms/functioning
The research team will be providing a brief summary of symptom and functioning scores to sites, for those participants who consent to have their scores shared with their clinical teams
e-NAV
Co-ordinating a method for individual sites to share their innovations with the CAMH team and disseminate these practices to all sites
Youth/family advisors and knowledge users have been actively working on evaluation plan
Similar to EPI-SET, e-NAV is using fidelity assessments, qualitative interviews and chart reviews.
CAMH recently rolled out a virtual client experience survey which will go to clients across CAMH
Advisory Committees
Both committees have enjoyed having speakers/project investigators attend their meetings
Informative about opportunities for participation
Provides sense of unity and organization, particularly for this project that has so many pieces
Advisors welcome your questions and want to contribute, please let them know if you have any questions or opportunities
Family Advisors
The group has good representation, with 8 members (North bay, Niagara, Durham, Waterloo and latest member has experience from Chatham)
Advisors share their experiences with the mental health system, and are eager to volunteer and help however they can
Actively participating in ECHO sessions and site meetings
Family advisors see the value in NAV and need for family support and education as part of NAV
Youth Advisory
Currently, each advisor is working on making a video about their individual experiences
Scripts were sent to CAMH Public Affairs for review
Recently met with Youth Engagement Facilitators at CAMH to learn about an animation program that has been successfully used for videos
The group has 5 members and happy to have more representation, particularly from clients who have received NAVIGATE
As clients at sites complete their EIP service, consider recommending them to this advisory committee
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