In Attendance: Aristotle, Augustina, Dielle, George, Janet, Lillian, Nicole, Sanjeev, Sarah, Abanti, Andrea, Laura
Find presenter for October ECHO – Dielle/Abanti
Schedule a flag in Feb to find a time in March to have ECHO planning meeting – Sarah
Email to Dayna giving timeline of when we will obtain current and NAV roles for WW – Dielle
Review feedback from sites re: safety SOP at next patient measures meeting with George and Sarah– Dielle/Abanti
Connecting with Augustina to build agenda together for the next YAC meeting – Dielle/Andrea
Send calendar holds for EPION panels and Nov 18th training – Dielle completed
Follow up on project plan to track activities/milestones for FAC and YAC members? – Dielle/Laura/Andrea
Follow-up on extending the calls to June 2020 so sites can have the 15 calls as planned (piper’s contract ends Jun 2020) - Dielle
Follow-up on extending the family calls to account for any missed calls? –Dielle/Laura
Abanti Tagore to be supporting Steering Committee, ECHO and Patient Measures and Outcomes
Laura Grennan to be supporting Family Advisory Committee, Implementation Committee and Post Training Calls
Andrea Alves to be supporting Youth Advisory Committee, ECHO and Service Measures and Outcomes
Kelsey Gamble presenting didactic and case presentation at Sept 24th ECHO
Scheduled EPI-SET ECHOs: North Bay: November and April, Niagara: January, Durham: March
Potential solution: start assigning sites to presentations going forward?
IT infrastructure: camera for Durham and laptop for North Bay
Quality improvement and ECHO planning should be done at the end of each debrief – otherwise should meet in March to plan for the next cycle
Current roles for WW and Sudbury are confirmed and implementation planning ongoing at these sites to identify NAV roles
Sarah and George requested to have pre-training webinars second week of November, no specific date yet – to ensure everyone completes mandatory readings as IRT material is content heavy
Two post training webinars to be scheduled for specific modules that trainers don’t have time to go over
No confirmation received that prescriber training will happen Nov 18th afternoon, must be communicated to the physicians
Invite full study team (old and new site leads) to breakfast on Nov 18th training:
First half hour: update on current operations, what we’ve achieved and how to structure things
Next hour: next steps and planning
Last half hour: convey the impact and importance of all site contributions to this project
Add new sites to director calls going forward, not having more calls
Research team members (either the sites or navigate trainers) should be on the director calls to mediate the challenges and frustrations – Sarah or implementation team member?
Potential Solutions: Reschedule the call if no one on our team is there; Two calls/month instead? – frequent briefer sessions than one long session
Dayna working to translate fliers to French, will notify group of completion date
IS’s have introduced the database to the sites in preparation, and a mock sample has been sent out with the meeting agenda.
PSSP is actively working with the site leads to identify how metrics are currently getting pulled for clinical tracking forms, and populating the tracking form – to be completed within the next week.
FAC members are curious of outcome measures and how they were chosen; currently not seeing how it all comes together and needs someone from research team to attend and explain
Potential solution: on an annual basis, scientific leads would come and meet with the groups– 4/12 meetings would be related to specific concrete updates in those domains
FAC members inquired about what happens with the patients after the 3 years of the service is over and the patients still need to be seen by someone. When does NAVIGATE end?
Can explain that service providers will only see patients for 3 years, in order to get new patients into NAVIGATE, we have to transition to family doctor or other specialized services
We are advocating for a permanent source of funding for ongoing training for clinicians in EPI care – this study’s outcome is not focused on the duration of care
Day 1: 3pm – 4pm: outcome measures
Day 2: 11am – 12pm: implementation and training
Sites should create report of how close their experience was in terms of ours regarding implementation – Sarah in organize?
Augustina/Lilian to work with Divya/Simone on importance and mandate, convey that we’re doing the measurements properly
During last 5 minutes of the presentation: discuss measurement scales, frequency of measurements, and experiential materials
Sanjeev to discuss challenges, solutions and updates from ECHO