Wednesday December 18th, 2019
Please see below for the action items and minutes from the December 18th Steering Committee Meeting
In Attendance: Nicole Kozloff, Augustina Ampofo, Dayna Rossi, Abanti Tagore, Andrea Alves, Laura Grennan, Dielle Miranda, Aristotle Voineskos, Janet Durbin, Sarah Bromley
ACTION ITEMS
Reach out to new referral to set up research appointment – Abanti
Update REDCap Referral link with date of next appointment – Laura completed
Review what’s in the protocol & protocol paper and follow inclusion/exclusion for eligibility of referrals – Abanti/Dielle
Finalize date & time for SCEI clinician site visit to Durham – Sarah
Explore Janet’s old REB with Jen Bertoni for REB for Thunder Bay – Dielle/Laura
Add Healthy Debates link on website – Andrea completed
Brainstorm ideas for recruitment videos for advisory committees for next SC meeting – Laura/Andrea
Send bios & quotes for EPI-SET website to feature advisory committee leads – Augustina/Lillian
DEICISIONS MADE
Obtain dates of admission from each sites clinic admins to figure out when participants have actually started treatment in EPI programs
MINUTES
PATIENT MEASURES
Received the first referral from North Bay! We will be contacting them this week about research ensuring North Bay is properly setup with laptop
Instead of removing the Client’s first consult/appointment with EPI program, it may be better to rephrase and ask, how long have you been in EPI services
Unclear from the question whether their first appointment is a consult or when they actually started treatment
Can obtain date of admission from the clinic admin for each site
Review what’s in the protocol and protocol paper to line up the inclusion/exclusion criteria; we have to follow what’s written in the protocol for eligibility of referrals
In the protocol paper it states that anyone in their first year of receiving NAVIGATE is eligible to participate
Folks that start receiving it are relatively new to the program anyway so that 1 year piece covers that
IMPLEMENTATION/ONBOARDING/TRAINING
Sarah figuring out which SCEI clinicians can go down and speak to Durham site about NAVIGATE; some have volunteered to go to the other sites as well
A few clinicians at sites doing NAVIGATE in a very rigid manner and feeling constrained by the model
It’s important that clinicians make the manuals and materials make sense to themselves – they are free to do whatever they want with the manuals, the essential point is that it’s being used
We should emphasis that psychoeducation comes first and foremost to mitigate the additional emotion that family have; to send a strong message that education is at the front
Instead of trying to tackle bigger pieces like IRT, might be more worthwhile to implement smaller pieces such as family work first so that other groups follow suite
SERVICE MEASURES
Have found that 0.5 FTE for this component of the study is being overused; have reviewed the time and support evaluators are putting in the study and finding ways to increase the support that can be provided
Thinking of how to be more efficient on time – Sandy and Mary are more acquainted and have now started to split up the implementation specialists
This year has been dedicated to learning the model and catching up on operations at individual sites – there is enough exposure to start implementation
Had anticipated training to take a lot of time, evaluations not as much
Currently a nice solution going forward with REDCap; working with RMS
Already started on developing a NAVIGATE practice profile with psychoeducation and modules to measure metrics and performance; this will be valuable to make fidelity assessments using Don’s tool a bit easier
Important to see that all these initiatives are transferable resources and can be used for many other projects that are happening here and at sites as well
ADVISORY COMMITTEES
To review further items from last FAC meeting at next meeting
Research team should not feel responsible to address all concerns brought up at YAC/FAC; these can be brought back to the steering committee to come up with the plan of action
Regular PI representation at meetings will allow for updates for the entire advisory groups beyond the lead or RAs
Healthy debates was a success all over social media! Augustina did a fantastic job
Lots of good conversations happening and interesting points brought up for other youth regarding research
ECHO
Discussed the various methods to increase survey response for ECHO
To potentially implement first, second and third prize winner for completing the survey
First person to complete = first prize winner; $100
Second person to complete = second prize winner; $50
Third person to complete = third prize winner; $25
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