In Attendance: Lillian, Marie, Hugh, Nicole, Sophie, Laura, Kevan
Action Items
Ask Steering Committee what happens to patients once NAVIGATE ends - Lillian
Try to set up a joint meeting between the Youth Advisory Committee (YAC) and Family Advisory Committee (FAC)- Dielle, Laura, and Andrea
Ask what the FAC is doing in terms of a presentation for the EPION conference – Laura
Have a representative from Performance Measures and Outcomes come to the next FAC meeting- Dielle and Laura
Provide feedback on the family e-learning module from the other FAC members – Lillian
Forward the link for the Families Living with Psychosis Tutorial to Laura- Lillian
Help Marie with document editing – Laura
Prioritize FAC recruitment – Laura and Dielle
Minutes
What happens to patients after EPI?
When youth are discharged from the EPI program, no further programs are offered, and no psychiatrists are able to take on new patients
Many committee members have experienced scenarios like this
One member mentioned that their family was passed to another service
Will inquire with Steering Committee
Youth Advisory Committee
Members spoke with Sarah about possibly sending a delegate to the youth committee to show them that they can have an impact
Will look into setting up a joint meeting with the YAC and FAC
EPION Conference
Nicole is registered and sharing transportation with the manager of North Bay
Lillian may only be able to attend the day of the conference with the family advisory committee presentation
Preliminary Family and Youth Engagement Report Outcomes
Members had trouble understanding the numbers there is a request to have it in a different format
Overall, FAC and YAC feel like they are engaged and heard, want to participate, lots of positive responses given
Members would like to have a better understanding of the measures in the study, they knows that the youth care about real world outcomes in terms of function
Families Dealing with Psychosis Online Tutorial
Marie was unable to access the video
Nicole was able to access it, but noted that it was not simple. She said that it needs to be easier to access so others can access it.
Nicole mentioned that the video is targeted at parents, but needs to be more broad
Lillian liked the structure of it and the fact that it gave a better overview of psychosis compared to information on the internet
Physician Engagement
Hugh was concerned that sites are struggling with the study, since FAC recruitment has been difficult
Sophie mentioned that physician engagement in other studies has also been tough
Physicians will be doing a call with Aristotle and George, but there are problems because physicians are not being compensated and there are few of them. They have decided to move the calls to lunch time and shorten them to encourage physician participation. They will also look into giving physicians education credits for the calls
Nicole mentioned that providing education hours to physicians has helped physician engagement in northern Ontario
Family Advisory Committee Member Recruitment
Everyone agrees that this needs to be a priority.
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