Thursday, November 7, 2019
In Attendance: Lillian, Marie, Hugh, Nicolle, Laura, Dr. Kozloff
Action Items
· Look at Lillian’s slides and provide input – Laura
· Find out why Thunder Bay site doesn’t have a psychiatrist – Laura
· Bring feedback to the ECHO organizers - Laura
· Email extra hours for November to Laura – FAC Members
Minutes
- Discussed how recruitment is ongoing
Feedback on Lillian’s Slides
Why are we participating? Slide
- Maybe add “provide patient input into research”
- Maybe add “improve prognosis for youth experiencing psychosis”
- Maybe add “improve access to care”
- Maybe add “make care more consistent across Ontario”
- Maybe add a piece discussing the impact on the family, how there’s a ripple effect on the family and everyone is involved
Slide discussing the role of the FAC
- Include language indicating that the FAC fully collaborates on the project
- If you have any other comments/suggestions please send them to Lillian or Laura
Reviewing the ECHO Curriculum
- Perhaps have a topic on self care for the patient and family that is not patronizing
- Perhaps discuss the messages sent in an acute psychiatric ward, emphasize the focus of hopeful messages
Presentation on Questionnaires by Dr. Kozloff
- Lots of effort is made to provide good Early Psychosis treatment, but 30% of youth drop out
- Not many measures exist that capture the family’s experience when someone is going through treatment
- Hugh commented how sometimes people are not able to access programs, and that sometimes people like some aspects of their services but not all aspects
- Lillian commented that two surveys would be too much
- The committee wanted to know if staff would be able to access results from the form – we will inquire about this at the Steering Committee meeting
- The committee agreed that the first survey should be given 3 months in, then at 9 months, 15 months, 21 months and 26 months
- The committee preferred the OPOC questionnaire, and wondered if it could be translated to French
Annual Project Meeting – Nov. 19th 8:30am-10am
- All FAC members are welcome to join
- We apologize for the confusion with the term SPOR, Laura has sent another email invite to the meeting.
Next meeting: Thursday, December 12, 2019
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