Youth Advisory Committee: May 24, 2019

1. Welcome and icebreaker – 2 truths and a lie!


2. Advisory Committee flier/poster finalization – they look great! They are good to be distributed.


3. EPION video clips

  • Including input from a broader team at the EPION conference on November 19th – looking for videos of different research relationships

  • Everyone send in videos? GoAnime online – other teams may have a subscription? Can be anonymous as well.

  • How would we coordinate efforts in GoAnime? – Karleigh

4. Client welcome document

  • Comments to bring back – Jasmyn

5. Onboarding document for YAC

  • Take time to look through it, bring back to next meeting – everyone

  • Doesn’t have to stay all as text!

  • Maybe try to bring down to ~5 pages?

6. Evaluation measures

  • Measuring engagement in the advisory committees with surveys

  • As soon as they are at a point where we can get meaningful feedback, we will bring them to the meeting

7. Might also measure patient/family service engagement in the study – Dr. Nicole Kozloff was hoping to come to the next meeting to chat about it – Dr. George Foussias may also come

  • Take a combination from other validated tools, give to study participants to measure their engagement in the program (NAVIGATE) throughout study participation


Recent Posts

See All

ACTION ITEMS If you would like to choose a type of e-gift card for research participants to choose, please look at the gift card repositories listed below and email Andrea with your choice – Augustina

ACTION ITEMS Follow-up with Implementation Evaluation team about sites’ strengths from the Fidelity results and more areas of improvement for our feedback – Andrea (in progress) Pass along survey feed

EPI-SET Youth Advisory Committee April 24th, 2020 Attendance: Tallan, Andrea, Sandy, Heather, Augustina, Janet, Karleigh, Sara, Victoria, Mary Action Items · Finalize and submit wording on the “Clin