Youth Advisory Committee: May 24, 2019

1. Welcome and icebreaker – 2 truths and a lie!

2. Advisory Committee flier/poster finalization – they look great! They are good to be distributed.

3. EPION video clips

• Including input from a broader team at the EPION conference on November 19th – looking for videos of different research relationships

• Everyone send in videos? GoAnime online – other teams may have a subscription? Can be anonymous as well.

• How would we coordinate efforts in GoAnime? – Karleigh

4. Client welcome document

• Comments to bring back – Jasmyn

5. Onboarding document for YAC

• Take time to look through it, bring back to next meeting – everyone

• Doesn’t have to stay all as text!

• Maybe try to bring down to ~5 pages?

6. Evaluation measures

• Measuring engagement in the advisory committees with surveys

• As soon as they are at a point where we can get meaningful feedback, we will bring them to the meeting

7. Might also measure patient/family service engagement in the study – Dr. Nicole Kozloff was hoping to come to the next meeting to chat about it – Dr. George Foussias may also come

• Take a combination from other validated tools, give to study participants to measure their engagement in the program (NAVIGATE) throughout study participation