ACTION ITEMS
If you would like to choose a type of e-gift card for research participants to choose, please look at the gift card repositories listed below and email Andrea with your choice – Augustina and Sara
Add Tallan and Victoria’s collaboration with Dr. Nicole Kozloff on e-NAVIGATE to the newsletter – Andrea
Coordinate schedule of investigators/guest speakers to attend YAC every few months – Andrea
Follow-up on opportunity for YAC members to attend research recruitment meetings with the sites – Andrea
Newsletter
Content looks good and is approved
Andrea will add a point that Tallan and Victoria are collaborating on the e-NAVIGATE project
e-gift cards
Youth participants that enroll in the EPI-SET study are paid for their participation (ranging from $35-110 depending on site and length of visit)
Currently, they can choose between a VISA gift card or an Amazon e-gift card
E-gift cards are a great choice because they are received immediately, but Amazon has not been a popular choice
During this meeting, we decided that each YAC member would choose one e-gift card that is available through online gift card repositories (https://giftcertificates.ca/gift-cards/ AND www.giftcards.ca)
So far, YAC members chose:
o Indigo
o Uber
o Gas/groceries
Terms of Reference
Last meeting, we reviewed the Terms of Reference and made some changes
The Terms of Reference is always available on our Google Doc, here.
It is a living document that we can continue to update
Interests
Investigators/Guest Speakers: we enjoy when investigators/guests attend a YAC meeting
We want to have more scheduled, but ensure there is a balance with our normal meetings so we have space for these discussions
Andrea will be coordinating a schedule so that they attend every few months
We would love to have Dr. Nicole Kozloff attend a meeting, and present on new developments in the field of psychosis research and also provide an updated definition of psychosis
Updating NAVIGATE Manual (language, terminology, etc)
We are interested in reviewing the manual to make it more updated and youth-friendly
Andrea brought this idea to Dr. Voineskos who said that YAC input would be greatly appreciated on this
o It would be a huge project to revamp the whole manual, it may be more likely to look at a certain section, and when the NAVIGATE manual is adapted virtually we could also have input at that time
Upcoming
Attending Site Meetings
There are 5 sites on the EPI-SET project whose clinicians present the research opportunity to their clients
The EPI-SET team is starting to meet with sites for 10 minutes to see how this process is going, if they have any feedback/challenges
It may be beneficial for YAC members to attend some meetings to provide your perspective directly to the clinicians
During this meeting, YAC members expressed interest in the opportunity to attend site meetings
Andrea will follow-up with meeting dates and times
Presentation
Augustina is coordinating a presentation at a future meeting which will discuss differences between research projects and quality improvement projects, how we can contribute to each type
Surveys
Andrea is sending out the anonymous feedback survey after this meeting
We have decided to complete these surveys every 3 months
So this survey will encompass feedback about your experience on YAC from May to present
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