Project
ECHO

Youth and Family
Advisory Committees

Meet the
Advisory Committee Leads 

My name is Lillian Duda, and I have been part of the EPI-SET project since the research proposal development in December 2017.  

"If we can show that by implementing a standard model of care for psychosis actually helps young adults stay healthy and stay out of the hospital, then we can use that evidence to help shape future services across Ontario."

Hover to learn more about why I joined >>

       My son used the early psychosis     intervention services at the Slaight Centre for Youth in Transition at the Centre for Addiction and Mental Health (CAMH), and my husband and I participated in the family education program offered there.  

As a family, we greatly benefited from the services offered. Together, we were able to find a path forward to help my son understand his Illness, and actually have knowledge and an understanding of how to help him manage the symptoms.   

I wanted to be part of this project because I believe we have been given an opportunity to demonstrate that we can improve outcomes for our children.

Individuals who need care deserve to have consistent, coordinated care no matter where they live across the province.

Lillian Duda,
Family Lead 

Hi! My name is Augustina Ampofo, and I have been a part of the EPI-SET project since January 2019.   

"Coordinated care is imperative and I truly believe that with the implementation of ‘NAVIGATE’ in Ontario, youth will be able to receive good coordinated care that can improve recovery as well as become sustainable."


Hover to learn more about why I joined >>

In 2012, I went through a period of psychosis and was hearing voices for 24 hours a day 7 days a week for over 9 months straight.

 

It was the scariest time in my life, however, becoming enrolled in an EPI program changed my life.

 

After going through this, I vowed that I would do anything I could to change the stigma and educate individuals on psychosis and mental health.

Augustina Ampofo,
Youth Lead 
 

Exciting Updates

Youth Advisory Committee members talked about their lived experience. 
Watch/listen below!
Victoria's Story
Victoria's Lived Experience
00:00 / 03:59
Tallan's Story
Griffin's Story
 

EPI-SET's Youth Advisory Committee Lead, Augustina Ampofo,was featured in a partnership between CAMH and Healthy Debates. A new website showcases the stories of four CAMH Youth Advisors who have lived experience with the mental health system and want to use their voices to make the system more effective and youth-friendly.

Check out the website here!

 
Family Advisory Committee members created a video to highlight the significance of implementing NAVIGATE and evaluating outcomes.
Watch below!

Representation

Both the Youth Advisory and Family Advisory committees are actively seeking new members to join.

If you know someone with past lived experience, please email emily.panzarella@camh.ca

Click the image for the Youth Advisory Recruitment Poster

*This poster was designed by the Youth Advisory Committee*

The Family Advisory Committee currently has 9 members.
The Youth Advisory Committee currently has 6 members.